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Founded Sep 2024 · Self-Employed · Remote · India

Autoimmune Support Club.

A community for people navigating chronic illness while still trying to make and do things. Because no one should have to figure this out alone.

500+ Members 300+ Interviews 47 NGO Connections Peer Support Autoimmune Advocacy

Origin

Why It Exists.

I was diagnosed with Immune Thrombocytopenic Purpura — ITP — an autoimmune disease where your body attacks its own blood platelets. The diagnosis took a long time. The support during that period was almost nonexistent.

Living with an autoimmune condition is isolating in ways that are hard to describe unless you've been there. Your condition is invisible. It's unpredictable. It's frequently dismissed by medical professionals who don't have enough time, context, or training to take it seriously. And you're often doing all of that while still trying to study, work, create things, and just be a person.

AISC exists because I needed it and it didn't exist. It's the community I would have wanted access to when I was first diagnosed — the one where people understand before you finish explaining.

Mission

"To build a space where people with autoimmune conditions can connect, be believed, find resources, and keep going — without having to do it alone."

Impact

What We've Built.

500+
Community Members
300+
Patient Interviews Conducted
47
Patients Connected to NGOs Globally
20+
Active Volunteers (from 50+ applicants)

What AISC Does

More Than a Community.

Peer Support
Connection & Community
A multi-platform space where members connect, share their experiences, and support each other through the shared reality of chronic illness — without having to explain themselves first.
Advocacy
Awareness Raising
Education-first content on autoimmune conditions, the diagnostic process, and how to navigate a medical system that doesn't always listen to you the first time.
Research
Patient Interviews
300+ structured interviews with patients to document experiences, inform advocacy, and feed into awareness resources. Their stories matter and they're recorded.
Connections
NGO Network
Connected 47 patients to NGOs and support organisations around the world — matching people to resources they didn't know existed or couldn't find on their own.

The Real Problem

Medical Gaslighting Is Real.

Through 300+ patient interviews, these patterns came up again and again. AISC is designed to address all of them.

What Members Experience
  • Symptoms dismissed as anxiety, stress, or "being dramatic"
  • Years-long waits for a diagnosis that should take months
  • No peer community during the most isolating period of their lives
  • Emotional exhaustion from having to advocate for themselves constantly
  • Navigating work, school, and relationships around an invisible illness
What AISC Provides
  • A space where members are believed immediately, not questioned
  • Practical resources on managing life with autoimmune conditions
  • Peer connections with people who genuinely understand without explanation
  • Access to NGO networks and support pathways they didn't know existed
  • A trained volunteer cohort to maintain community health and safety

Related Research

The ITP Project.

AISC is advocacy. But advocacy without tools only goes so far. The ITP rapid diagnostic test is the research project that came out of this work — built to shorten the diagnosis timeline that AISC members have described again and again. Provisional patent filed April 2026.